I’ve been on Sutent for almost two weeks now, and so far, it’s going ok. The best change is that I don’t feel as wiped out as I did on Inlyta. I mean, I’ve actually cleaned the litter box – voluntarily. Both of them! And today, Molly and I spent the day shopping in and walking around San Francisco, which would have been unheard of a month or two ago. We only walked a mile (plus the shopping), and I came home exhausted, but I couldn’t have done it while on the other medication.
I am noticing side effects cropping up. I’ve got hand-foot syndrome, which shows up on me as redness and a sensation of burning on my palms and the soles of my feet. It’s been manageable, but it is becoming more uncomfortable. I will probably contact my doctors to see if they have any tricks. The worst part of the hand-foot syndrome is that using my sewing machine seems to make it worse. Probably the vibrations of the machine.
I’m also experiencing changes in my taste buds. It started with spicy foods (and tooth paste) being painful. Now I’ve found that I can’t taste salt, and sweet things taste off. Those are hard. No more french fries or ice cream for me. Even water tastes metallic. Kind of gross.
And finally, diarrhea. So much fun, but not too bad yet.
All of these side effects are ones I’ve had before, and it is nice to have some ideas of how to deal with them. I’m also bracing myself for the side effects to get worse. There’s a reason why Sutent is prescribed in cycles of 4 weeks on, 2 weeks off. I hope that it won’t get too bad or that if it does get bad, it’s only towards the end of the 4 weeks.
For now, I’m just thrilled that I have enough energy to do things with friends and family. And that I don’t feel like I have a fog in my head. I kind of feel human again!