My doctor finally got back in touch with me. (Usually he’s much more prompt.) He really encouraged me to give Inlyta another chance to see if the side effects will settle down, this time on a smaller dose. I told him OK, but with two caveats:
- We start with a set time frame – if this doesn’t work within X weeks (I’m thinking 3), then we drop it and move on to the next therapy.
- I get palliative care to help with the pain. The marijuana does help a bit, but not completely. And if it’s any indication – before Inlyta, I was using it once or twice a week. On Inlyta, it was as much as 4 or 5 times a day.
There’s a third caveat, but that has more to do with my friends and community, and not at all to do with my doctor. I know this line of treatment will knock me out and wear me out, and leave me unable to do much. So, for that, I’m going to need support, and lots of it. I know I’ll be tired, but I’m also going to need to see people and talk to them. So, texts and visits would be greatly appreciated. Phone calls, too, though I’m not sure what my phone skills will be. If you want to come by, but aren’t sure about whether I can do it, please just ask. I will tell you yes or no, and I will mean whatever I say. And yes, you may wear me out a bit, but I’ll have plenty of time to nap; your company will help more than you might expect.
On the up side of it all, I feel really good right now. No pain beyond what I normally had, being a 46 year old out of shape person with cancer. My energy levels are much higher, though I still feel a bit of fatigue, as if I were getting over a bad cold or the flu. So, that’s good.
Also on the up side, I bought some fabric today. I needed a little fabric for the binding of one of the quilts I recently found again, and when I walked into the store, I was blown away by all the pretties. So, I blew most of the last bit of money that was on my state disability card on a few cuts. In away, I think this is a good sign for my mental health. I don’t NEED this fabric (no, really, I don’t! shhhh!), and purchasing it means I’m looking to the future, and being able to use it. I’m seeing a future!